Because I don’t believe it is possible to live in a constant state of despair or euphoria —whether by Divine design or the laws of physics, nature, or what have you — I am pleased to report that we had a good night last night! Nik slept through the night —mostly. He really only stirred a few times and I didn’t actually have to get out of bed to go to him. Wow.
I absolutely attribute that progress to the power of prayer and positive thinking which has flowed forth from all of you in the past few days. Yesterday wasn’t any better than previous days and yet Nik slept like a rock last night. I even took some time yesterday afternoon, while the rest of the household was sleeping (Nik and both cats —all nestled in their respective places) to do something utterly mundane and completely normal. I baked cookies! Did I have any special occasion which required them? No. Did I want to eat them? Well, duh, of course —but that wasn’t my motivation. I just needed to feel normal for a while.
This is close to the time of year when I start baking and creating goodies to send to the army of doctors, nurses, therapists and social workers back in California and here in Delaware who helped pull our family through those many dark months after Nik was born and who have so impacted our lives since then. Such a simple thing really —the baking and making of goodies —and yet it is the only thing I feel I can do that is from my heart and my hands to say “thank you” no matter that it seems trivial and inadequate. But it’s too soon to do that just yet.
Huh, it occurs to me right now as I write this, maybe I made those cookies for YOU! My way of saying thank you for holding our family in your hearts as we struggle to find answers for Nikolas. Um, I only made a few dozen so you may have to share…
**********************************************************************************
While the “children” were nestled “all snug in their beds,” I did take some time yesterday to do more research. Somehow, I stumbled across some information that just clicked. It doesn’t exactly address the root cause but it puts all of Nik’s symptoms into a context which makes so much sense and points to some possible avenues for further exploration. I am going to talk to Dr. Mary about it at some point today. She called Friday night and we are going to start scheduling some testing for Nik while she waits to get something scheduled with the diagnostic group.
It’s not answers and resolution —yet. But I feel more hopeful and so much less alone in this than I have in a very long time. Thank you for your kind words of support, your prayers, your personal emails. They really do make a difference.
Today, my heart feels lighter. I’m going to revel in the feeling and use it to continue the forward momentum.
…or maybe just revel.
Oh lovely. So glad…
The cookies are delicious, thank you!
It’s the soft sweet taste of knowing things went a little better for you guys last night.
Ah, yes. Finally, she sleeps. Sending another hug.
Ahhhh. So glad to hear this. I just love that you made cookies. Take care…we will keep sending all our happy thoughts your way.
Very nice-
You’ll remain in our thoughts and prayers.
Take care…
Those look delicious. Gluten-free? =o) So glad for you today.
I am so glad that you are feeling better and had some time to yourself! Thanks for the cookie! I have a Hershey Bar here with my name on it. I will pretend it is a cookie from you! I hope you have another restful night. That is great you make all those cookies for everyone every year! I am in awe!
So glad to hear from you and that Nik was able to sleep through the night—-hope some answers are on the horizon. Virtual cookies are more than appreciated!
Great to hear about the sleep.
And wanting to feel normal…I know what you mean!!
Still sending prayers your way (I’m not a pray-er, but kind of a meditator-with-a-mission)
Hope there are more good sleeping nights coming up soon.
Yes, sure, the power of prayer and postive thinking – but don’t underestimate the power of cookies! Sometimes they are the only thing that gets me through.
SO wonderful to read this post today, and so good to hear that you got some sleep.
Such a relief ..
Thanks for the cookies …
I am so glad you had a better night. I will continue to pray for you guys! Thanks for the virtual cookies, they are the only kind I can have at the moment.
I’m so glad you’re feeling better and that Nik slept well! After all the Halloween candy I’m skimming off the top of the boys’ candy bowl, virtual cookies are truly perfect.
Cookies are yummy, but it’s even better that you feel lighter today. And that Nik had a good night.
yes, REVEL! and bake and putter! i’m SO pleased to hear that you all got sleep, that possible answers are on the horizon, that Dr. Mary is on the case, that your spring is in your step and the spatula in your hand!!!
sending many xxxx
Sleep makes a huge difference!
Great cookies!
Hooray for being able to revel in “normal”. (you know I am!) Still praying my heart out for your sweet angel. I completely believe that you will be guided to the right answer for Nik. It always fascinates me that there are so many things that can affect our bodies. I had never even heard of IH. Amazing.
I am crying happy tears for you up here! Interesting about the IH – I hope the information helps you. I believe that the power of positive thinking probably led you there.
Now I am thinking about baking, gotta get out the holiday recipes!
The cookies smell delicious, thank you, but I’ll stick to my liquid love. They look stupendous, and just the right golden shade.
I, too, am a baker, and when Miss M was first DX’d, I literally had loads of baked items laying about the house, uneaten. It is absolutely about grounding yourself, feeling normal and cozy and warm. And I am so proud that you are taking care of that need.
I am also praying that maybe this new direction will bring some answers and relief for your sweet boy.
good, good, good!