For five consecutive nights —hopefully six after tonight —my son has slept peacefully through the night. Ten to twelve hours.
Straight.
Through.
The.
Night.
The last time he did that my son was about two and a half years old.
The changes I have seen in my child in the past four days have been nothing short of miraculous to me —and that even accounts for nearly a full day spent in the emergency room over the weekend. (It turned out to be nothing they could identify and he’s completely fine now.) I’m trying so hard to wrap my brain around the words to convey the magnitude and scope of these changes; the words and changes are swirling so fast, I simply cannot make them make sense yet.
I can tell you this; there is not a single area of development that has not been positively impacted by the discontinuation of Nik’s seizure meds. Motor skills are blossoming, his appetite is returning and his resistance to certain food textures is diminishing. Communication is increasing as he tries to couple simple sounds and gestures in meaningful combinations. His four year old attitude when he doesn’t want to cooperate is crystal clear —yet he complies anyway. Problem solving skills are increasing at an alarming rate; I see new hazards in my home each day that I didn’t think he even noticed or could figure out how to reach.
Nik’s therapists and I have marveled at how hard he pushes himself; how he challenges himself to not only master a skill but to push through his fears or his sensory issues. The things he could not tolerate at all in the past two years he now attempts consistently; each time he pushes just a little farther in spite of his own resistance. What used to cause him excruciating cognitive dissonance now merely seems to challenge him to try harder.
My heart aches with the stretching it has done to accommodate my maternal pride, my hope, my ever increasing sense of ease; I can feel it oozing out all over people around me, too, as I comment on blogs or talk to friends and family. The love, the hope, the profound respect for my child and appreciation of his intellect and drive; it’s all so much larger than I have allowed myself to embrace these past couple of years.
I feel like we’ve landed in Oz and everything has become technicolor.
Wow! I know, I know, I know. It’s amazing. But, can I just say, he looks SO grown up in that photo. Nik is not a baby or even a toddler anymore. He’s a little boy. A beautiful little boy.
Simply amazing. I am so very happy for all of you!
Wow! This is exciting to read!
Rainbows and unicorns indeed. What a wonderful little guy. I’m so happy that things are going so well for him.
Ohhh. Sleep, glorious sleep. And what a symphony of progress for Nik!
I’m so glad that dropping the last of the Lamictal wasn’t the hell you expected. Heck, it wasn’t even purgatory, it was right up to the rainbows, right away!
Wow.
This is so exciting!!! I’m so happy for all of you!
And just when did Nik grow up?! He suddenly looks very grown up in that picture.
I didn’t think dropping the last bit of Lamictal would make a dramatic change.
I was wrong.
And I’m happy I was. WooHoo!!
Joe
I am so happy for you all. Obviously this change has been for the better for Nik. And getting some sleep for yourself: Priceless.
Sending a big smile and a hug and a smooch on the head for sweet Nik!Imagine what he must be thinking/feeling…
Fan freakin Tastic!! I sent you an invite for my blog that I just turned to private.
The expression on his face is priceless. As proud as you are of him, sweet mama, you can tell he is also just so proud of himself. Bravo Nik, bravo Niksmom.
what wonderful news!
It is so GREAT to read all this wonderful news!!! So happy for you and Nik!
Speechless…and so happy for you all!
And BTW- Nik does look really grown up in that pic!
And look! Oz is still full of munchkins! Oh, wait. It’s just my kids.
We are SO excited. We can hardly wait for all the Nik stories to come!!!
This is really incredible. I am so very happy for you all. Amazing what changing one medication, and getting a normal night’s sleep, can do for the whole family.
Good for you – no – GREAT for you!! ; -)
HURRAH!!!!!!!!!!!!!!!!
technicolor with rainbows too!
So very excited to read this post! Tears of joy for you and Nik…I have been so amazed at the strength, endurance and determination I’ve seen from both you and Nik!
Awesome!!!!! The best news. I am so happy for Nik and you!
After all your hard work, your heart must be bursting at such wonderful progress. I am SO happy you get to experience it, and SO happy that Nik is doing SO well!
XO R
How exciting and wonderful for you and your son! This is fabulous news. I hope things continue to improve for you both.
Such good news! I am so happy to read this.