If you take a moment to read
this post, you’ll have some idea of what we’ve been going through the last few days and nights around here. For some reason, Nik’s system decided that it didn’t need to be, um,
regular and that’s been causing quite a bit of discomfort for him.
Things reached critical mass this morning when even a suppository wouldn’t accomplish the job. Oh, well, that and Nik waking with a fever over 102 degrees Fahrenheit. After calling the doctor, we suspected we might be looking at abdominal x-rays after our office visit. Nik’s anatomy is not exactly the “standard issue” courtesy of his intestinal malrotation which gives him a greatly shortened tract.
Where most people’s intestines and bowels look just like you might see in an anatomy book (or like this), Nik’s doesn’t have as many twists and turns. Well, actually, it had more twists —some of which nearly did him in just shy of his first birthday —including a sneakily hidden appendix diagonally opposite where it should have been (his was up under his stomach). Thanks to a fabulous surgeon in Oakland (yep, Nik’s a Californian, du-ude!), Nik made it through but now has more of a short hairpin turn in his large intestine than the nice long U-which wraps around the perimeter.
All this is to say that Nik’s been having some troubles and a lot of pain. And, that we can’t take a wait-and-see approach all the time because we don’t know what sort of scar tissue is there and what sort of nerve damage may or may not have occurred during his surgery.
True to form, we went in expecting Thing A and came out with Thing B instead; that’s kind of par for the course with Nik.
Thing B, as it turns out is
another raging ear infection. When
Doctor Mary exclaimed
“Oh my goodness, Nikolas, no wonder you’re in pain!” we knew it wasn’t pretty. In spite of what all the ENT (ear-nose-throat) doctors say, it certainly
is possible for a child with myringotomy tubes to have an infection without fluids draining out of the ear. We suspect that Nik’s got some dried fluid or wax in front of the actual tube (closer to the outer ear) which is blocking the drainage route. Kind of like a beaver dam in a river; it doesn’t necessarily block the entire flow but it restricts it enough to change the normal or expected course.
So, hear we are, a mere nineteen days into the month and Nik has had a stomach bug,
followed by strep, and now another ear infection. Poor guy.
None the less, with the addition of yet another antibiotic (his second in as many weeks), some multidopholus powder to his formula, and the help of our dear, dear friend,
Addie Ville, we’re forging ahead with our plans to visit Santa tomorrow on the
Santa Clause Express train. We went last year and had a wonderful time. If Nik’s feeling better tomorrow, I expect it will be even better than last year!
Fingers crossed.
Poor guy. I hope he feels better tomorrow and you guys can all have some fun.
I am SOOOO crossing my fingers for you!!! Good for you for hanging in there!!! Hugs to you!
XO R
Poor Nik – he does go through it dosnt he. Hope he perks up so he can enjoy tomorrow.
hugs to Nik…and Evan had tubes galore and many ear infections!
Oh the poor little man! We are battling double ear infections over here…absolutely no fun whatsoever. I hope he feels better soon!
Poor Nik, poor parents! What a rough month you’ve had.
I hope that the new antibiotic makes things much happier, enough so that Santa can help make things happier too!
Oh Nik…I hope his ears and tummy clear up yesterday!
I love that photo! Hope he’s able to go today!
poor baby! Tis the season. I hate this time of year and sickness. We have been to the ER for mipactions and enemas for both boys, been through more suppositories, home enemas, clogged toilets, and sore bottoms than I can count. The worst was when Mooser had a prolapsed rectum…shiver. Lots of hugs from me and the hope of a *smooth* holiday (pun intended).
[...] at this point); Nik’s gut issues pre-date his autism diagnosis by years as he was born with an intestinal malrotation and has a “short gut” resulting from corrective surgery. We simply do what we do because it [...]