Okay, okay, I know I owe a major post about Nik turning six and all that stuff. And another one about how the poor boy has been so, so , SO stinking sick that we’ve narrowly averted trips to the ER for respiratory distress and all sorts of fun stuff. It’s coming, I swear. But then, so is Christmas. Frankly, the holiday may arrive before I get to those posts at the speed with which our days are passing.
Nik’s finally recovering from this dread illness. H1N1? Maybe; no one ever bothered to test. Roseola? Check. Bronchitis? Check. Antibiotics? Double check! Nebulizer treatments? Check. Inhaled steroids? Check. Oral steroids? Check. I think you get the general picture, no?
In the middle of this rousing fun, Nik had a pretty good day today. He actually ate an apple for the first time. Yes, you read that right; my son —the challenged-eater with the voracious appetite and non-finicky palate— bit and chewed AND SWALLOWED nearly a third of an apple at lunch time. Granted, I still need to follow the bites with some pureed food so he doesn’t get all freaked out by the chunky texture.
HE.ATE.APPLE!
I thought that was the pinnacle of my day. Considering the subsequent trip to the lab for a blood draw in which they had to stick Nik twice, it very well could have been. My son, finally able to breathe with relative ease after days of being in dire straits, had other things in mind. Without narrating a long and unimportant set-up, suffice to say the boy blew both Niksdad and me away…
by saying Mama and Papa.
TWICE.
INTENTIONALLY.
Using sign language, too—leaving no room for doubt.
Okay, fine, I admit it was prompted. But I never expected to hear a tiny, breathy little voice say the actual words.
I’m not sure, but I think I saw Niksdad wipe a tear away. I can’t be too certain; my vision was a bit blurry.
*sob*
Such happy news. May it be the first time of many. I can only imagine how that felt for the two of you. Congratulations!
Oh my God!
Oh my God!
Oh my freaking hell of God!
I can’t come up with anything coherent. I am over the moon. Words fail me, my sweet friend.
Bottom line, I can imagine no greater gift.
Tears of joy.
Oh, the joy! THE JOY!
Wow. A good day.
GO NIK!!!! I’ll never forget the day Joey came up the stairs and actually called me “Mom” for the first time- at four years old. This is a true red-letter day. And I am so glad he is feeling better!
Go Nik, I would have cried too!
I think you just got one of the best Christmas presents ever my friend! Wow! Go Nik! Glad he’s feeling a bit better and hoping you will soon begin hear that sweet voice more and more!!!
I knew the punchline here, and still. Tears. Em wanted to know why I was crying, so I told her all about Nik, and she had to see pictures, and she says to tell him, “Way to go!”
Beautiful, beautiful news.
OH MY SWEET HEAVEN ON EARTH!!! THAT IS HUGE!!!!
an apple is big, yes, of course, but saying mama and papa!! WOW!!!!
I AM LAUGHING out loud with sheer joy!!
Yes! And so it starts.
HOLY F*CK.
I’m crying.
OMIGODOMIGODOMIGOD!!!!!!!!!!!!!!!!! Oh, Niksmom, I am jumping for JOY over here! OH MY GOD!!!!!!!!!!!!!! I remember when the aba therapist told me that Noah said his first word: UP. I will always remember, I was standing in the street in front of my house, and hearing this news, I started to cry with one of the greatest joys I have ever known. I am SO glad you got to experience it – WOWOWOOW!!!
XOXO R
So wonderful! I am just breathless with happiness for you!
Ohhhhhhh.
That is astonishingly wonderful!
Health, mama-papa-love, and much apple-feasting to you all this Christmas!
[...] Please read this. [...]
Oh my.
Merry Christmas!
Wow!!!
Mine was 6 when I first heard “Mommy” without prompting.
Have a great Xmas.
*sob* and hugs and hoorays!! A Christmas miracle, indeed!!
Honey, MY husband almost cried when I told him. What a boy, what a family. Who needs better holiday gifts than that? It can’t be beat. The power of the word … The power of love, of hope. Wow.
I, of course, saw your tweets before this, but I still had to come read it. Mama, Papa … Merry Christmas, happy family!
Gasp! I’m wiping tears away as I type. I know exactly how you feel and it’s AMAZING to hear for the first time!!!!!!!!! Yay! The BEST Christmas present EVER.
what a gift! the sweetest words ever. and how AMAZING that it was a doubly sweet, that he said both mama and papa. wishing God’s continued blessings on the three of you.
AAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am overwhelmed with emotion right now.
Merry, merry, merry Christmas, dear friend!
Made me cry. OMG. WOW!!! WHAT A CHRISTMAS PRESENT!!! GO NIK!!!
Wow! Wow! Wow!!!
Wonderful, wonderful Nik.
So happy for all three of you.
How beautiful…
Coming by way of Jess… can barely see thru the tears. What a beautiful gift. Merry Christmas!
You’re not the only ones crying …
Amazing. Truly amazing. Nik. You. Niksdad. So very, very happy to read this!!!!!!!!!!!
Oh oh oh. So so amazing. What a gift, what a boy, what love.
Fantastic! And your mention of steroids made me think of LKS (Landau-Kleffner syndrome)… A neurologist that saw my son said she sometimes prescribes a trial of steroids to see if it helps with language in kids with LKS. My son is apraxic, and the steroids didn’t help, but she said sometimes they do!
Wow! This is big.
I just found your blog and I’m glad I did. I’m now following your adventures.
well, congratulations on this. very exciting. he’s filled with surprises and i know he’ll be changing, growing, in his own way, giving you guys all sorts of inspiring moments. still, these first steps are always the best, it’s quite wonderful.
That is just awesome.
Never underestimate the power of Nik!
Merry Christmas!
Joe
I know I’ve exclaimed and whooped it up with you elsewhere, but it’s not Official until I do it here. So HOORAY!!! YAHOO!!!!!! CONGRATULATIONS!!!!!!
I’m so excited for you! Wow! No one is going to fault you for some tears for such beautiful moment.
That’s fabulous! So glad Jess posted a link to your blog! That’s such fantastic news! Go ahead and have a cake! You all deserve it!
Yes those are the kind of firsts that are most likely to affect parental eye function, heart rate and breathing – it’s a miracle we’re still alive really.
Good wishes to you and yours for the New Year and lots of new firsts for us all.
HURRAY!
I am so sorry to find out that Nik is really struggling with his health and the hyperactivity. That is rough. Real rough. I hope that Christmas went well for you. The holidays seem to add an extra energy to the days that can already be filled with extra challenges. I’m thinking about Nik and praying he feels better soon. Don’t forget to take care of yourself.
Has brought tears to my eyes. Wow just wow!
Hope you did mange to have a wonderful christmas.
Thanks for you suggestions and advice on my blog today. I wanted to respond off blog, but can’t find an email.
If you are interested, I didn’t share a large part of the story because it’s so long and complicated. I would be happy to tell you how I have an attorney from Wrightslaw and how it was the local LDA and Maryland Resource Center who sent us to him because of the complexity of Jonathan’s case.
corrie at mypickletalksautism dot com.
Wow.
I think of all the things my kids were able to do when they were six: play t-ball, rollerblade, ride ponies, read books, and run around with friends and then I think of Nik saying “Mama” and “Papa” for the first time at that same age.
It’s amazing that he’s alive at all, let alone being able to talk to you. I guess it’s more than you thought he’d ever be able to do but do you ever watch so-called “normal” kids Nik’s age and feel resentful that they’re able to do so much that Nik can’t?
You can’t imagine what it’s like to be the parent of a disabled child, until you are one. I know, my first child wasn’t disabled. We aren’t resentful. We have no reason to be. We rejoice in our children’s achievements without resenting them, or comparing them to other children.