Unstoppable

But we won’t let nothin’ hold us backWe’re gonna get ourselves together, come onWe’re gon’ polish up our act, yeahAnd if you’ve ever been held down beforeI know that you refuse to be held down any more
Ain’t No Stoppin’ Us Now ~ McFadden & WhiteheadTrue to form, it takes more than a raging fever and [...]

Read Full Post »

Never Say Die

What counts is not necessarily the size of the dog in the fight – it’s the size of the fight in the dog. ~ Dwight D. Eisenhower
As we’re weaning Nik off of naps and one of his meds, he definitely gets more tired by the end of the day. I suspect it’s a combination [...]

Read Full Post »

Abundance

If music be the food of love, play on; give me excess ofit, that, surfeiting, the appetite may sicken and so die.
~William Shakespeare~

While he may lack the prodigiousness of the Bard, Nikolas seems to be experiencing an explosion of communication lately. Not just in the generic cooing and babbling which he often does, or even [...]

Read Full Post »

Knowing Without Proof

Ah, intuition takes me thereIntuition takes me everywhere~John Lennon
In my desire to share last week’s experience with the diagnostician, I realize now that I left out some pertinent information which may put my attitude into context for some of my readers who are outraged on my/our behalf. (And, truly, I am so touched by that. [...]

Read Full Post »

What are IEP’s made of?

Snips and snails, and puppy-dogs’ tails…
More like gnashes and wails and long paper trails –that’s what this little boy’s IEP will be made of! While Nik is still battling the upper respiratory bug and the ear infection which have kept him down (but never out!) for nearly ten days now, I’ve spent the last few [...]

Read Full Post »

Update: IEP tomorrow

A quick update on the school situation —

I spoke with the case manager on Tuesday afternoon. While she seemed to be sympathetic to our situation, her official stance was “Let’s go through the IEP and see what school comes up with before we look at what’s next.” Toeing the party line, for sure. Needless to [...]

Read Full Post »

Belated Monthiversary

Yeah, I’m gonna take that mountain. Ain’t nothing gonna slow me down.And there ain’t no way around it.Gonna leave it level with the ground.Ain’t just gonna cross it, climb it, fight it:I’m gonna take that mountain.
I was born a stubborn soul;This is just a stumblin’ block;I’m gonna take that mountain.—Reba McEntireI had hoped to post [...]

Read Full Post »

School Daze, School Daze

I thought I’d better check in and give an update on the school situation before time slips away and my already overloaded brain forgets …that’s a small window of time these days!
Let’s see, we’ve found out that —for right now— we cannot pull Nik out of school and get his therapies covered by Medicaid. On [...]

Read Full Post »

Nik Walks…The Evidence

Here’s a still frame from the video of Nik walking.

Check out the video HERE.

Read Full Post »

Put your hands together…

Put one foot in front of the otherAnd soon you’ll be walking cross the floorPut one foot in front of the otherAnd soon you’ll be walking out the door
Jules Bass (Santa Claus is Coming to Town)

Yes, folks, it’s true! After a multi-year delay and lots of fits and starts, I think I can safely declare [...]

Read Full Post »