The shoes should have been our first clue.
After a perfectly delightful morning —one which began after more than twelve hours’ sleep for Nik and a leisurely breakfast for myself and Niksdad— we began our preparations for a jaunt to the local peach festival, followed by a visit to the park. The pre-departure routine is always [...]
Archive for the ‘frustration’ Category
If the shoe fits…
Posted in ASD, anxiety, autism, communication, community, developmental disabilities, expectations, frustration, intuition, language, multiple disabilites, non-verbal, parenting, peach festival, sadness, sensory processing, sign language, special needs on August 1, 2009 | 12 Comments »
Update
Posted in ASD, allergies, autism, cerebral palsy, developmental disabilities, frustration, medications, parenting, sleep deprivation, special needs on February 7, 2009 | 11 Comments »
Thank you to all of you who weighed in on my last post about our dilemma. When I wrote that post, we had not yet hit the proverbial wall; I didn’t know the behaviors would get even worse. The first night of the medication —only two doses given at full strength —left Nik in a [...]
Gimme a Break!
Posted in ASD, autism, cerebral palsy, developmental disabilities, friends, frustration, illness, multiple disabilites, parenting, self-pity, special needs, whining on July 18, 2008 | 9 Comments »
Tonight it feels like I can’t catch a break even if I used a net.
My wunderkind is down again. A dear friend emailed me yesterday “apparently no one told Nik he has special needs.” Apparently no one told him he was sick, either.
Today was a bumpy day after a bumpy night in a string of [...]
Highs and lows keep coming
Posted in ASD, anger, autism, cerebral palsy, communication, developmental disabilities, frustration, parenting, special needs on May 19, 2008 | 14 Comments »
It is said the darkest hour is just before the dawn. Each day brings with it a new dawn and a darkness which, depending on circumstances, can seem bleaker and blacker than one thinks possible.
Yes, as Drama Mama said in her comment on this post, we do seem to do things in a BIG [...]
He hates hats, too (updated 1:45p)
Posted in ASD, EEG, autism, frustration, multiple disabilites, pain, parenting, special needs on March 6, 2008 | 23 Comments »
(Subtitled: Nikolas and the VERY BAD hair day)
In light of all the sweet comments about how well my wild child-biker boy seemed to tolerate the ambulatory EEG, I must come clean. I confess to engaging in a bit of Potemkin-izing in posting that photo. Not that the moment itself wasn’t real; rather, it was only [...]
Murphy was a Sadist
Posted in ASD, EEG, autism, behavior, frustration, multiple disabilites, pain, parenting, sleep deprivation on March 4, 2008 | 20 Comments »
Damn Murphy anyway. I should have known better than to post all that wonderful “spring is coming, la, la, la” crap the other day. I might as well have stood in the middle of Fifth Avenue just daring the Manhattan cabbies to hit me as I crossed against the light.
Whatever it is that [...]
Y’ Not?
Posted in ASD, advocacy, autism, frustration, negotiation, parenting, solutions, special needs on February 11, 2008 | 15 Comments »
Saturday morning’s frustration with the Kid Zone left me angry and feeling like I was on the war path. It was not a pleasant sensation. And frankly, it wasn’t pretty either; I’ve been on the other side of the fence —watching another person be so consumed with the righteousness they felt that they scorched others [...]
Avalanche
Posted in ASD, autism, development, follow-up, frustration, health, pain, parenting, special needs, yo-yo on November 30, 2007 | 13 Comments »
One foot in front of the otherOne foot back to counter itDays like these you’ve got to find it in some other wayIt’s all or nothing baby
Avalanche, start inside of meAvalanche, down through the treesAvalanche, start inside of meAvalanche, hell down through the trees
“Avalanche” by Matthew Good
I read an email from Susan at The Family [...]
Moonlight and Madness
Posted in ASD, autism, blogging, communication, frustration, parenting, special needs, speech, writing on November 24, 2007 | 8 Comments »
In the moonlightAll the words you sayMake it relatively easyTo be swept awayIn the half-lightCan we trust the way we feelCan we be sure that anything is real?
“Moonlight” by John Williams, Alan Bergman and Marilyn Bergman
Seems lately that a few of us have been off-kilter, out of sorts, unable to concentrate, feeling disconnected, or overwhelmed. [...]
Same as it ever was…
Posted in ASD, MRI, autism, books, frustration, mystery illness, parenting, special needs on November 16, 2007 | 13 Comments »
Nothing changesAnd nothing stays the sameAnd life is stillA simple game.~ The Moody Blues “Nothing Changes”
Plus ça change, plus c’est la même chose ~ Jean-Baptiste Alphonse KarrWe’re finally home and Nik is settled into bed after a long, exhausting day at the hospital for his MRI.
I’m too tired to write any cute stories about how [...]
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