Perseveration Purgatory Redux

Think doors.

Think Nik never met a door he didn’t like to open and close. And open and close…

Think little boy on serious drugs who doesn’t know the meaning of sitting quietly in a waiting room…

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Surgery Update

Long and short? Nik did very well and is home now — miserable, whiny, uncomfortable, but home! Thank you, everyone, for your prayers, good wishes, and healing energies put forth on Nik’s behalf.

The O.R. was backed up and running an hour late. Nik was dopey on his seizure meds and an empty stomach; he ended up tripping on air something or other. Gave himself a huge goose egg on his forehead and lots of tears ensued. HIS, not mine!

Actual surgery was lickety split! Nothing of significant note found by the ENT, though he did mention Nik’s left ear was pretty “gunky.” (Yes, I’m sure he used that highly technical term!)

It never occurred to me, until the anesthesiologist said something about “helping Nik breathe,” that he was going to be intubated. I’m not sure why that kind of freaked me out a bit but it did. I mean, it’s not like the kid didn’t already spend months on a ventilator while he was in the NICU; somehow today felt different — slightly scary.

Nik doesn’t handle the narcotics they gave him very well so he’s been very agitated since we left the hospital. He’s dopey and exhausted but unable to sleep more than 15-20 minutes at a time before he wakes up screaming and disoriented. I’m anxious about the red flush he has all over but the hospital staff told us it was most likely from the narcotics; Niksdad said the same thing but I’m still watching Nik like a protective mama hawk!

I have no reason to think anything will go awry tonight but I am not ashamed to confess that I will be much happier —more at ease — once my rough and tumble little guy is back to his old self!

Meanwhile…here’s my Wordless Wednesday contribution. I call it “Perseveration Purgatory.”

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From Barnacle Bill to King of the Seas

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(Almost) Wordless Wednesday

I’ve fully recovered and there are lots of good things going on. Life seems to be picking up speed lately and I don’t find time to write as much as I’d like. I will though.

For now, I’ll leave you with this…

Nik really licks likes his Daddy!

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My First Love

From pigtails to perfume
I’m growing up so soon
Going to parties
I love having my own room
Don’t spend as much time at home now
There’s so much to do
But I know, it’s true

I’ll always be daddy’s girl
Out in the great big world
He’s taught me what’s right from wrong
I feel so strong
I’ll always be daddy’s girl

I fill up my diary
With all my dreams and hopes
My future keeps changing
Like a rainbow kaleidoscope
A special boy waits just for me but
Even though he’s so nice
I know, inside

I’ll always be daddy’s girl
Out in the great big world
He’s taught me what’s right from wrong
I feel so strong
I’ll always be daddy’s girl

Soon I’m gonna be all on my own
I feel ten feet tall
I’m not that little girl any more
I can do it all

I’ll always be daddy’s girl
Out in the great big world
He’s taught me what’s right from wrong
I feel so strong
I’ll always be daddy’s girl

The greatest gift in the world
Is being daddy’s girl
He’s given me the perfect start
Right from the heart
I’ll always be daddy’s girl
I’ll always be daddy’s girl
I’ll always be daddy’s girl
Daddy’s girl

Daddy’s Girl ~ Sailor Moon

You know, I didn’t fall for just any ol’ Tom, Dick, or Harry. Oh, oops —ahem— actually I did. My grandparents had a funny sense of humor and named my father and his brothers —one fraternal and two identical triplets born in 1931— names which could be (and were) shortened to Tom, Dick, and Harry. They were minor celebrities in their hometown.

Happy Birthday, Daddy!
Though the years have changed us, they won’t change my love for you.

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Giving Thanks

(For my visually impaired readers: This series of photos depicts Nik actually feeding himself crumbled goldfish crackers —his current favorite food, drinking from his cup using a straw, and signing “Thank you” which he has recently learned from watching the Signing Time videos. I’ve also included the American Sign Language illustration for “Thank You.”

Oh, yeah, I should probably mention that he is shirt-less; his new mealtime trick is taking off his shirt while he eats. Go figure.)

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Postlude to a dinner out…Prelude to a good night’s sleep

Whatever you want to call it, I call it music to my ears. If I could bottle that sound and drink it I would be the world’s happiest drunk!

Alternatively titled “Song for a spitfire before burning out at dark”

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Born to Be Wild

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Video Wednesday

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When the cure is worse than the ailment

THE FUN JUST NEVER ENDS…

Translation for the pictorially challenged: Nik has both an ear infection and an infection at his g-tube site, and is on antibiotics which are creating a highly undesirable gastric effect resulting in extra work for Mommy who hasn’t slept much lately and has to resort to run-on sentences!

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