Thank you to so many of you who sent good wishes for Nik’s lead screening in the wake of the recent toy recall. I am pleased to report that Nik’s lead levels are extremely LOW. In fact, they are way under any of the typical thresholds for concern. YIPPEE!!!
Also, for those who have been following along, Nik’s recent immunology testing came back good, as well! The doctor called this afternoon to tell us that Nik’s system “mounted a robust response” to the vaccines. He’ll still need to be checked every six months or so because of the IgG deficiencies (two subclasses —1 and 3) and/or if he starts to get lots of illnesses or infections.
That was wonderful to hear today since we had to take Nik for an EEG this afternoon. Too soon to know any results —this one was to check the status of his seizure activity. Nik has had absence seizures (like staring spells but not) for more than a year and has been on a few different meds. His new neurologist is hoping to take him off one of the meds because it can have some developmental impacts. The technician entered lots of “comments” on the screen as the EEG was running but I couldn’t see what they were —they were in numeric code , darn it!
I think Nik is still having seizures and worry about him as he becomes more mobile; he has already had a few episodes of “dropping” at school and at home. That’s where his head quite literally just drops —slams, really —to the floor (or desk or whatever is closest to stop it) and then he resumes his activity. It’s disconcerting that school won’t consider a one on one for him; they want to educate the entire staff on what his seizures look like. Been there, done that; Nik’s got the bruises to prove how well that one worked.
Anyway, that’s the health report. Now back to our regularly scheduled blog…