I know I’ve been out of sight on my own blog for a while. Things are relatively okay —just moving too damn fast to catch my breath lately. Some good, some not so good, and lots of in-between.
The words seem to be all jammed up inside of me lately and I can’t quite get them out to tell you about so much that’s happening.
Weaning Nik from his seizure meds. I’m trying to put together a post that captures some important information I hope will be useful to other parents. Not in a “Gee, look at our awful experience, please feel sorry for my child” way; more along the lines of “Holy crap, we never knew these things could ever happen and no one ever warns you. I don’t want to get all alarmist on you but you might want to pay attention to this…” sort of way. Yeah, it’s a very difficult balance to strike and I’m struggling with it.
I will say this though — the side effects from weaning the meds are every bit as bad as they were on the upswing. Sleeping through the night —once the hallmark of Nik’s good health and stellar disposition —has basically become a thing of the distant past. He seems to sleep through the night once roughly every two weeks; just enough to tease me with a small burst of energy and the feeling that “Okay, this isn’t so bad; I can make it through now.” Then “WHAM!” along comes a spate of really bad nights.
Toss into the mix that Niksdad started school this past week, my hormones are totally out of whack, and my mother decided this was the week she simply had to come help me with a bunch of small home improvements projects for a few hours each day when Nik didn’t have any appointments. Oh yeah, toss in my knee is just about recovered from an injury weeks ago and I haven’t been to the gym much and you can kind of imagine how manic I’ve been feeling.
So, it’s been just too much effort for me to crank it up to try to share things of moment with you. Sorry. It’s not that I don’t want to; it’s just that I don’t want to expend the energy. Subtle difference, I know. Truly, it’s me, not you. Sigh. The brief spurts of energy I do have I use to visit other’s blogs, Tweet, or do some research online.
But I’m slowly getting back to the gym (which helps with the hormones and energy levels a bit), Nik’s making good progress in so many areas —in spite of the meds issue and now a painful ear infection, and Niksdad really likes his new job, too. The weather is cooling off and my house is getting put back in order —both literally and metaphorically speaking— and I expect I may feel human again sometime soon.