Um, hi. Yeah, I know I’ve been AWOL for a while. I’m not even going to try to relate everything that’s gone on in our lives since my last post. Well, okay, for the benefit of the fourteen faithful readers who keep checking back for posts, I’ll try.
- Nik’s been making amazing progress with his “talker” (speech device).
- Nik’s made tremendous gains in eating “real” food. Turkey sandwiches, chicken, spinach (!!) and the like.
- We’ve hit upon something we think might be at the root of Nik’s gawdawful gastric troubles. But it’s complicated and difficult to explain. It’s still a work-in-progress so I’m not ready to write about it yet, sorry. If we’re right, it just might help us all sleep again!
- Nik’s been battling rampant ear infections…again. On and off since Memorial Day. We see the ENT (again!) tomorrow to discuss removal of yet another tube and whether or not to replace them…again.
- Nik’s getting over his sensory issue with sand in a major way. As in we-may-be-hitting-the-beach-this-summer kind of major way. (Insert quiet, hopeful SQUEEEEEEE!)
- Nik’s learning to play in my sister’s pool without his swim vest. As long as he has his arm floats, he does just fine. He can now doggie paddle the length of the pool a couple of times over. The boy adores the water, for sure! Nearly every day the first words out of his talker are “Go swimming. Cool.” Yes, we’ve figured it out; he really does say cool when he means pool. Sometimes he’ll even voice the “puh” before touching the button for cool. It’s adorable. And annoying. But mostly adorable.
- Sadly, the relationship between Nik’s ear infections and lots of swimming? Pretty much a one-to-one correlation. Which, no surprise, also correlates directly to broken sleep. GAH! With this latest heat wave, we’re willing to forego some sleep in order to satisfy the boy’s pool cravings.
- And, last but most definitely not least, Nik has returned to school. Today was his first (part) day. This topic merits a separate post for so many reasons. For now, though, suffice to say it’s not a perfect situation but it’s so much better than we could have anticipated. Where we once felt sick and hopeless about the idea of putting Nik back in school, there’s now a glimmer of hope. It may be elusive— like that pot of gold at the end of the rainbow— but we’re going to chase after it with all we’ve got.
We’re ready, Nik’s ready. I hope school’s ready for him!