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Archive for the ‘Nik video’ Category

Holly Jolly Christmas

Merry Christmas!

Hope yours was full of love, laughter, and unexpected pleasures.

Nik wanted to send you his holiday greeting in person…

Maybe next year we’ll just skip all the expensive toys and gifts?

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You know it doesn’t make much sense
There ought to be a law against

Anyone who takes offense
At a day in your celebration
Cause we all know in our minds
That there ought to be a time
That we can set aside
To show just how much we love you
And I’m sure you would agree
It couldn’t fit more perfectly
Than to have a world party on the day you came to be

Happy birthday to you
Happy birthday to you
Happy birthday

“Happy Birthday” ~ Stevie Wonder

Oh what a wonderful and emotional day today! My baby —my tiny miracle who came into the world far too early, who has fought so hard for everything he’s achieved, the boy with the smile that can light up my darkness and a laugh that is music to my soul— turned four today!

Hard to imagine; the time has gone so fast! We’ve gone from this

to this
in what seems like the blink of an eye!

To celebrate today, we took a special trip on the Santa Claus Express Train run by this outfit. It was cold and sleeting when we arrived and Nik wanted to walk, walk, walk. Brrr! But walk he did…with Daddy while Mommy got some “supplies” to keep him occupied during the ninety minute train ride through the scenic Red Clay Valley.

We weren’t sure how Nik would handle the potential sensory overload. He amazed us by being a very happy little railroader until almost the end of the trip. As long as the train was in motion, Nik seemed to be very relaxed and content to sit on one of our laps. That doesn’t surprise me as Nik has always been a very good car traveler and seems to enjoy looking out the window on our journeys. In fact, he was probably less rambunctious than some of the other four year old boys on the same train! Of course, that may have been because they were all eagerly awaiting the arrival of Santa Claus in our rail car; Nik hasn’t yet figured out who the fat guy with the beard and red suit are. Maybe next year? In any event, he seemed to really enjoy himself. We did too.

By the time we arrived home, Nik was pretty tired and took a short nap before we had to head down the street to his Nanny and Granddaddy’s house for a special birthday dinner. It was really special this year because his Aunt J and (maybe one day Uncle) W, joined us for dinner. So did Nik’s cousin, E, and her boyfriend T. It was a small gathering but felt festive. And it was wonderful to watch my sister and my niece both really play with Nik. It’s been a long road for them to get comfortable with simply being with Nik —a sign that they’ve all three grown tremendously over the last year!

Nik sat in his booster and took tastes of Mommy and Daddy’s food through the entire meal. He even had some of the cake and yummy homemade peppermint ice cream —made just for him by his doting Nanny! There were gifts aplenty (more on that in another post later) and smiles all the way around.

Nik tumbled into bed and was sound asleep within minutes of getting home. Niksdad and I reflected over the last four years and how far we’ve come —both as parents and as a family.

My heart is so full that it’s overflowing through my eyes.
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Here’s Nik’s first-ever train ride…

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Well, it’s not quite wordless…

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Here’s a quickie update as I am now sick and coughing and choking up fur balls everywhere. Oh, wait, that’s my cat that does the latter…

Suffice to say, the stress of recent weeks (What? You’ve missed it? Read this, this, this, or this) has finally caught up with my poor, sleep-deprived body. Today I have a sore throat (feels more like a sinus-y kind of sore throat), hacking cough from post nasal drip, and a low-grade fever. Not enough to allow me the luxury of “calling in dead” to my day job (SAHM!), but enough to really miss the days when I could park Nik in a playpen and give him a few toys and a teether! Oy.

I did drag my butt along to Nik’s feeding therapy this morning. That is going so incredibly well —but that’s a post for another, more coherent-thinking time. We’re going to try to switch back to Miss M for Nik’s speech therapy, too. Again, a post for another time.

There’s some forward motion in our quest for answers to Nik’s episodic pain; we have an appointment with one of the docs on the diagnostic team on December 20th. They did offer an earlier appointment but I wanted to make sure Niksdad was able to go with me. So, until next month, we are going to have to sit tight and be generous with the Advil and/or Tylenol cocktails. Ugh. Of course, Nik’s dance card is pretty full up until then anyway with a sedated hearing test (auditory brainstem response, ABR), the cerebral palsy clinic, his four year old check-up, the cardiologist, the pulmonologist, and his various therapies. (Oy, no wonder I’m sick.)

Meanwhile, Nik’s started with a bit of a runny nose today; funny thing is that the pain episodes seem to decrease when he’s draining. Yet all the diagnostic tests show no sign of anything going on in his sinuses or ears. ARGH. So, hmmm, do I hope he continues to have a runny nose and no pain or stays healthy except for the pain? Yeah, I know…I’m stocking up on tissues tomorrow and keeping my fingers crossed!

I have lots of things on my mind that I want to share —most of it really good stuff —but my brain is so fried. I blame it on the cold medication! One of these days I’ll get around to posting about the speech and feeding situation, our search for autism education support in a non-school setting in our tiny state (DE), and some more great books I’ve read. I have been meaning to write up my thoughts on the book the Kristen sent me —Jonathan Levy’s What You Can Do Right Now to Help Your Child with Autism. There’s some good stuff there.

Thanksgiving will be a low-key affair this year; my sister is not only hosting but doing it all. I think I’ll bring a few good bottles of wine and call it even! I am looking forward to the company of my family and expressing joy and gratitude for the wonderful things in my life. That includes some pretty nifty new online friends and acquaintances, too.

Meanwhile, I’ll leave you with Nik’s Thanksgiving training video…

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(Note: Drafted on 8/28/07. Posted 8/30/07)

OK, you know that Nik likes to be brushed ’cause I told you about it here. Recently, I was trying to capture video of Nik walking and singing. Yeah, right…it was a total bust! But what I captured was pretty cool…and part of it was completely unexpected! He climbed into my lap and even tossed aside one of his favorite toys! Oh Miss D would be so proud!

You won’t see my face because I was trying to hold the camera and brush Nik at the same time. Think it’s easy? Lemme see your videos, smarty!

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