Posts Tagged ‘Wordless Wednesday’
Posted in Uncategorized, tagged AAC, ASD, autism, cerebral palsy, communication, developmental disability, good stuff, gratitude, milestones, multiple disabilities, nonverbal, parenting, progress, special needs, unstoppable Nik, Wordless Wednesday on November 14, 2012 | 12 Comments »
Ok, so I know today is the whole Wordless Wednesday thing and I could skate by without a post and just slap up a cute picture of my kid and be done with it. But I can’t because, in this case, the picture is just a small part of the story. And this story is too good not to tell.
We’ve been going through a few bumpy stretches around here as we work to find a new equilibrium. Between Niksdad working nights now and getting less time with Nik, the wonky school schedule, the “super storm,” the broken speech devices (it’s fixed now!), the belly troubles, the ear infections and the early triennial evaluation of every aspect of Nik’s needs and services…yeah, bumpy. When we get into a challenging run of days, it’s easy to forget to look for the good stuff.
So, what’s so special about a picture of my uber-cute son sipping on a beverage at our local Starbuck’s? The fact that he asked to do it.
Our pediatrician’s office is near a Starbucks with a drive-thru window. Whenever we go to the pediatrician, as we did yesterday for yet another raging ear infection, we stop at the drive-thru for Nik’s favorite treat: lemon cake. Nik only ever gets it after seeing the doctor. I don’t even recall how we started it, but it’s become a part of the ritual, part of the litany he recites
endlessly as I drive with his speech device. “Doctor’s office first, lemon cake next!”
Over time, we’ve progressed from sharing a slice between us to
Nik hogging it all to himself wanting a whole piece. I usually drive and sing and hand back a bit of cake here and there as we head home on the highway. It’s not exactly the neatest way to do it, but it’s always been such a hassle to try to wrangle Nik in public places with lots of things for busy hands to get into while Mama pays for stuff. In short, it’s been a sanity-saving measure for me.
As we passed the Starbucks on our way to the doctor’s office, Nik kept repeating the word inside on his device. “Yes, baby, we’re inside the car.” “Yes, Nik, we’ll be inside the doctor’s office soon.” I didn’t really understand what he wanted but was following the pattern of AAC use which is that you acknowledge every utterance so as to encourage continued communication. It’s become so ingrained that there are days I have to catch myself from doing this to my husband as he speaks!
I assume that I have interpreted Nik’s communication correctly because I didn’t hear it again. Until I am about to turn into the drive-thru lane. From the backseat of the car, I hear it…
Inside. Inside, please. Inside, Mama. Inside. Want sit inside.
My boy knows what he wants and can tell me. My miracle child, who was once able to communicate only through self-injury and tears, can make himself understood without endless prompting or cajoling! The magnitude of this milestone, years in the making, does not escape me. As I pull into a parking space, I am rewarded by the sound of laughter as Nik claps his hands in delight. Clearly, his success does not escape him either.
Once inside, Nik proceeds to use his device to tell the barista “Want lemon cake.” I admonish him to use his nice words; “Please,” he says in the quirky digitized monotone I have come to love. In this moment, the endless hours of teaching, prompting, shaping and modeling fade from my mind as I watch the naturalness with which he connects with the girl behind the counter.
For a fleeting moment, I tell myself I might consider buying a pony if he asked.
I may regret this later…
Happy, happy sigh…
‘Cause everyone that sees you always wants to know you
And everyone that knows you always has a smile
You’re a standing ovation after years of waiting
For a chance to fall and shine
Everyone calls you amazing, I just call you mine
Posted in Uncategorized, tagged ASD, autism, cerebral palsy, developmental disability, good stuff, milestones, multiple disabilities, parenting, progress, special needs, Wordless Wednesday on January 4, 2012 | 7 Comments »
I’m a bit behind-times here this week. Nik has gone back to school after a long and challenging (for all of us, but especially so for him) break. However, he has also come down with either a sinus infection or an ear infection. Or both; we find out when we see the doctor later today.
To counter the elevated
threat stress levels today, here’s something which makes me smile no matter how low I am feeling. I hope it brings you joy, too.
A very belated happy holidays from our home to yours! May 2012 bring you a wealth of good things, good people, good feelings.
Posted in Uncategorized, tagged autism, cerebral palsy, communication, developmental disability, humor, milestones, multiple disabilities, pretend play, Wordless Wednesday on February 9, 2011 | 11 Comments »